Remember that April is Parkinson's Awarness Month!

Remember that April is Parkinson's Awarness Month!

Thursday, February 27, 2014

Staying Active and Not Giving In

     I find myself walking my children to the bus stop when not even half way there my legs feel like lead and don't want to move...I keep walking.  I make myself go on walks even though my legs will start to hurt no long after we have left the house (luckily I have a stroller to push around now, that helps).  I make myself workout...I stopped when my feet first started hurting.  I am working out again and can't wait to see the results.  Not just for me but for my husband too.  I would rather stand than sit because everytime I get up from sitting my feet feel as if they broke in a million pieces. 
     I would like to go back to the specialist but I don't want the same out come as before where he barely looked at my paper work (which he did in front of me), and he stepped out for a private phone call on his cell phone and only left me with his intern. When he came back into the room and sat down he basically said I was a lair (in a round about way). When I told my neurologist this he didn't look to pleased and I was scheduled an appointment but they never called or told me when it was rescheduled...so I haven't seen or heard from them since...I pray that the one specialist that I love is still on our insurance plan, but not sure.
      It's hard being a new mom again after all these years.  I have forgotten a lot of things about babies.  It's sad to say that I don't remember changing not one diaper of my 11 year son's when he was a baby...I remember bits and pieces of his babyhood, but not much.  That hurts; a lot.  Thankfully my husband remembers a lot and tells me things.  I thank God everyday that he has blessed me with such a wonderful husband that helps me with my memory and other things.  Every now and then he gets frustrated...but who wouldn't.
     What I can't stand is forgetting things and people say, "you're too young to forget things like that." or "It's cause you got a baby," or "it's your blond moment".  I haven't told many people what's going on, but you never know what people are going through, or suffering with.  I would tell them if it was an official diagnoses...as for right now; I don't have one because my symptoms at the time were not severe enough and he didn't want me to be on medication for the rest of my life yet.  He did say that it is the early onset stages of Parkinson's. maybe that could change, it could be something totally different and I try not to read anything about it or about anything medical.  If I have questions about something I Google it and see what pulls up, I don't even click on the links for more information.
Thank you for reading...

Wednesday, February 26, 2014

Somethings have Changed and yet somethings Have stayed the same

It's been a long time since I have done this...Here are the things that has changed:
     1. God has blessed us with a baby boy.  He will be a year in 2 months.
Things that haven't change:
     1. The symptoms, from the feet to the shoulder and then some...I did ignore them while I was pregnant. 
     2. I haven't gone through anymore tests or gone to anymore doctors...I am going it alone for now until I think they will be able to help me!