I DON'T WANT TO WAIT ANYMORE

Hey.  I just read some things from a sight and normally I don't go to them.  Anyway, someone asked a question about Parkinson's having stages and that peaked my interest.  Further reading of other posts made me very unhappy.  Sometimes a diagnoses can take 2 years and the other one said it was almost four I think before the right diagnosed was given.  I can't physically go threw anymore.  I am worn out.  My daughter told me today that I have gone to the doctor so much that she worries every time I go.  We have gone through so much last year it's really not funny.  Around Christmas time we thought that I might have cancer, trying to keep things together and trying not to let the little ones know, but they know without even a word they just know.  Thank God, we found out that I didn't have it.  But I am still no further knowing what is wrong than I was when I first started.  There are two doctor's appointments in my future, and after those two...I'm done.  At least until things get worse or something major happens (I guess that would be the symptoms getting worse...lol).  Anyway, I guess I ranted enough for today.  Goodnight everyone, Thanks for reading, God Bless.

may be i figured it out...

Hello everyone, I hope this blog today finds everyone doing well.  I think I figured out what's going on with me! I remembered that my mom had told me awhile ago that she had some minor strokes either at my age or a little older.  I wonder....if that is what is going on with me.  I guess it won't hurt to ask the neurologist the next time I'm in there.  Thanks for reading, God bless.

? New Symptom ?

Hello everyone.  I know it's been awhile since the last post but life happens.  I'm not sure if this is a symptom or not, but sometimes when I am walking there is this sharp pain that starts from my hip usually on the left hand side.  It kind of feels like hot pins or something close to it.  The messing up what I want to say or very slow at what I want to say is happening again, it wasn't bad for I don't remember, but I just started noticing that again.  My heart, here recently feels as if it could just beat right out of my chest, which makes me short of breath when that happens.  Most of the time these episodes only last a few minutes or seconds.  I have been doing things that is not good for my arrhythmia such as, coffee, chocolate an things like that because of the caffeine so that could definitely be the cause of the heart thing.  I'm trying to see if I can remember anything else that has happened or that is new, but nothing is coming to mind right now.  I guess this is all for now.  Thanks for reading.

New I guess

Hello everyone.  Well I guess this could be a new symptom.  I am having a hard time swallowing, like I need to swallow, but my throat feels as if it closes before I can so I have to swallow a harder than I should.  I don't know if this means anything or not, but it's here so I won't forget about it.  I have an appointment in November and I hope that I can have all of this printed up for my doctor.  I have trouble still remembering things, and I mess up what I am saying a lot, sometimes it's backwards and other times it's like I know what I want to say but it is just not connecting to my brain, or visa versa and that drives me crazy.  I did walk in the Susan G. Komen Race for the cure it was 3 something miles and I wasn't sure how my legs will do.  They did great and the kids and I finished in a little under an hour.  We normally walk about that long around the block and at the beach it is always longer than that.  I was fine I guess.  Going up the stairs is a pain the first three are okay, but anything after that my legs feel as if they had lead or something strapped to them and it hurts to move them, that is why I don't skate on skate night at church anymore and I still keep trying to do the things that hurt because, I don't just want to sit on my ass and wait for someone to say oh we finally know what your diagnoses is.  By then my muscles might have shrinked to nothing if I just sat around, especially if I see another one like I did in August making me feel like I was a lair and that it must be all in my freakin' head.  I wanted to SCREAM: WHO THE HECK DO YOU THINK YOU ARE? IF YOU ACTUALLY READ MY FILE YOU WOULD KNOW THAT THERE IS SOMETHING WRONG WITH THE FRONTAL LOPES AND IT ISN'T SOMETHING THAT I AM LYING ABOUT! SO YOU NEED TO GO BACK TO MED SCHOOL OR RETIRE AND LET YOUR INTERN TAKE OVER!!!!!!!!!!!!!!!!!
Sorry I guess I just had to get that out again.  I guess that's enough from me tonight...lol. God Bless.

Migrans and Forgetfulness

Hello everyone, okay so this past Friday I had one of the worst migane ever.  It came on so fast I hardly had time to blink.  I went to lunch with a bunch of friends from the school where I volunteer.  It took me a long time to order my food, I knew what I wanted I just couldn't remember what it was and I couldn't even say it.  it kind of felt like someone or something was preventing parts of my brain to connect with the other parts. What felt like ten minutes of not being able to put simple words together to let the very understanding lady behind the counter know what I wanted was probably only five minutes.  While eating and talking my vision started to leave and by the time lunch was over i could see only one face at a time and only if i were looking directly at the person,  My friend had to take me home so my husband could go back and get the car.  I had to take double the amount of medicine.  It was scary, like I've said I had never encountered one that delayed my speech and thought process. 
Monday, just a little bit ago, I forgot what a yellow ribbon was for.  How could anyone forget that.  Out of all of the ribbons I could've forgotten.  It makes me truly sick that I forgot that the yellow ribbons are for our soldiers.  I honestly don't know what I was thinking.  I love our soldiers and want them all to come back safe and sound.  I see the yellow ribbons all the time on my fb page too, i played it off how badly it bothered me, oh it's a Monday or I'm not awake yet i haven't had enough coffee, but when I asked i truly did not remember and to me that is something of a big deal.  I even have one on my blog and it's been there since i started writing it so i know i knew i just had no clue this morning.  they seriously need to find out what is wrong with me...i do;t know how much of days like this i can take.  it makes me literally want to scream to the top of my lungs.  i support our soldiers active and non active retired or just got out i support them 100%!  My hubby is my hero!

I'm so Tired

Hello everyone.  I guess this might be a new symptom.  About a month ago I have started to get very tired.  normally wouldn't go to bed until way past mid-night, now I am lucky if I make it past 10pm.  Then I will wake up at least 3 times for no reason.  During the day I sleep.  I wake up long enough to volunteer at my son's school and when I get home I am able to check a few things on my computer and then fall asleep right in the middle of it.  I must have an eternal alarm clock 'cause I usually wake myself up at 2 so I can meet him at the bus stop.  Anyways, I guess this too is stuff I need to remember to tell my regular neurologist and maybe he will send me to someone who actually takes the time with me.  My arm is still driving me crazy from all the twitching it is doing.  Thanks for reading, God Bless.

More things to try to remember

Hello everyone.  Ok I guess these are fairly new symptoms.  For awhile now I can be in the middle of saying something and then I get stuck and I know what I am going to say cause my brain is like saying it over and over again.  It's like the word is just not taking the proper channels to get to my mouth so I can say it.  The other thing is today, my arm has been twitching almost constantly except for when I move and then as soon as it doesn't it will start right back up again.  Then my left cheek started twitching too, but that one was quick.  That's all I have so far.  Thanks for reading, God Bless.