Hello everyone, today I am going to diagnose myself. I think I have Parkinson's. I say that because, I guess I have left a lot of things out that I just thought were stupid and not important to tell anyone about. Okay, so here are the things that I thought were too stupid to tell the doctor(s) about...
1. I get choked very easily, this started about a month or so ago. I get choked in the shower more times than I can remember, the last time my daughter was in the bathroom talking to me, it scared her. She asked what happened and I couldn't remember. I didn't black out or pass out, I just think I forgot where I was or something, I'm still not sure what happened.
2. I can't drink with out it spilling down my chin about a good four or five times before I can drink anything and I have seriously thought about switching to straws only.
3. I have a sudden urge out of the middle of no where to go pee. Sometimes it hits me, right after I already went. I didn't know that this is also important to tell the doctor. Maybe I just thought that I had a lot more to drink than normal when it happens. I don't think so.
4. It's hard for me to remember things. I have to repeat it at least a dozen times and maybe even then I will still forget.
5. The tremors or what I call twitching happens all over and when I mean all over, I mean it. It gets better when I move. I can move and won't feel anything, I use to think it was because my mind was off of the movements. I can be driving in the car and the leg that I don't use for the brake will twitch. Sometimes they are stronger than others and sometimes they even scare me. I get them in my legs, shoulders, ribs, butt, thighs, and ear. When I move it disappears. Which is kind of embarrassing when you want to show someone and it doesn't do it anymore.
6.My speech is all messed up. I say things backwards or mess up the meaning or just can't put what I want to say altogether. Sometimes I pause in mid sentence trying to figure out where I was going with what I wanted to say and then I might even switch topics altogether.
7. I get aggravated more easily than I use to.
8. Just yesterday I noticed that my legs felt tired, almost heavy. This is new to m because I had never had that feeling before.
9. I am cold, I feel as if I am freezing, even when my husband tells me my hands are warm, this too is fairly new. I am the type of person that gets cold easily, but never like this.
10. Since yesterday I don't like chocolate. I tried to eat some and to me it was nasty, I spit out a good four pieces.
11. I don't put all the letters in or I hit the wrong keys. Thank God for spell check!
12. I get more confused easier than I use to. Simple things.
13. My handwriting has changed. Sometimes I write like me and other times I write like a child, then it will look totally different and sometimes small, sometimes big. My signature has changed sometimes too.
Okay this is the list I think I need to take with me to the doctor, if I can remember to print it up. Everyone else has tried to diagnose me and so I figured I would give it a try for myself. Thanks for reading. God Bless!
Remember that April is Parkinson's Awarness Month!
Monday, December 20, 2010
Wednesday, December 15, 2010
We are Finally Getting Somewhere
Hello to all. Okay so here is the latest news. I have to go for three hours worth of testing in January, this is to see what part of the brain is the problem and to try and rule out Parkinson's. The doctor visit I had earlier today was at the Oncologist. There was no mention of the back and neck MRI and no mention of the bone marrow. However, the good news is that what they found on my brain MRI is believed not to be cancer. It might be a tumor or a cyst. on my sinus cavity. His orders were for me to have a Merry Christmas and not to worry. He is going to send me to an Ear, Nose and Throat doctor after the first of the year.
Here are the things that I have forgot to tell the doctors, I need to type this down before I forget. Sometimes when I talk I have noticed drool, this has happened about four times now. My back sometimes hurt, but I'm not sure if it is really bad pain or not since I have a high tolerance for pain. My right eye has been twitching since Monday and it is now Wednesday. I have been stopping at green lights, this has happened twice now. I see myself doing things and I am not sure if I am moving at normal speed or slow, this happens sometimes. I think the most that I feel this has happened would probably be three times so far. There might be other things, I might have forgotten.
Through this entire thing I have never once doubted the fact that God is there with me every step of the way. I guess I should be worried more than I am. But I am not, why worry, whatever it is, it is. There is nothing I can do to change it. Worrying will only make me feel worse, which I feel fine, when I don't have a monster headache. I am still me. and God has never left my side. I want to thank everyone for there thoughts and prayers. Thanks for reading.
Here are the things that I have forgot to tell the doctors, I need to type this down before I forget. Sometimes when I talk I have noticed drool, this has happened about four times now. My back sometimes hurt, but I'm not sure if it is really bad pain or not since I have a high tolerance for pain. My right eye has been twitching since Monday and it is now Wednesday. I have been stopping at green lights, this has happened twice now. I see myself doing things and I am not sure if I am moving at normal speed or slow, this happens sometimes. I think the most that I feel this has happened would probably be three times so far. There might be other things, I might have forgotten.
Through this entire thing I have never once doubted the fact that God is there with me every step of the way. I guess I should be worried more than I am. But I am not, why worry, whatever it is, it is. There is nothing I can do to change it. Worrying will only make me feel worse, which I feel fine, when I don't have a monster headache. I am still me. and God has never left my side. I want to thank everyone for there thoughts and prayers. Thanks for reading.
Monday, December 13, 2010
The EEG and Nerve Conduction
Hello everyone, last week I did the EEG and a nerve conduction. They also gave me the results of the MRI. They found nothing wrong with the brain, nothing different showed up.
The EEG; they put gel and wires on my head and I had to close my eyes for twenty minutes and after a certain amount of time a strobe light would go off, it was annoying to say the least.
The nerve conduction was the same, no big deal, no new surprises. I don't think anything showed up on that either.
Now, I have to go to an Oncologist, because of something that might have to do with the two spots on the MRI from the first one. Something to do with bone marrow. He is suppose to be checking my blood. I also had more blood work done while I was there at the neurologist.
I also have to go to another doctor to get my memory and cognitive stuff tested. The first part of this was done today. My next part; the three hour test part isn't until January. I think I might of passed the first part, I'm not sure how I will do on the next part though.
On the way to that appointment I received a phone call from the Oncologists office and that appointment is on Wednesday this week.
I was hoping that I would find stuff out before Christmas. Hopefully, they can give me answers to whatever is going on. Anyways, that is what is going on. Sorry it has been awhile since my last post. Thanks for reading and God Bless.
The EEG; they put gel and wires on my head and I had to close my eyes for twenty minutes and after a certain amount of time a strobe light would go off, it was annoying to say the least.
The nerve conduction was the same, no big deal, no new surprises. I don't think anything showed up on that either.
Now, I have to go to an Oncologist, because of something that might have to do with the two spots on the MRI from the first one. Something to do with bone marrow. He is suppose to be checking my blood. I also had more blood work done while I was there at the neurologist.
I also have to go to another doctor to get my memory and cognitive stuff tested. The first part of this was done today. My next part; the three hour test part isn't until January. I think I might of passed the first part, I'm not sure how I will do on the next part though.
On the way to that appointment I received a phone call from the Oncologists office and that appointment is on Wednesday this week.
I was hoping that I would find stuff out before Christmas. Hopefully, they can give me answers to whatever is going on. Anyways, that is what is going on. Sorry it has been awhile since my last post. Thanks for reading and God Bless.
Thursday, December 2, 2010
Still Waiting...
I'm still waiting, I guess this means one of two things that I can think of. One: they called my husband's cell phone and left a message which he will get either at lunch or when he gets home from work. Two: there is nothing wrong and we will go over the MRIs on the next appointment. I don't know. I guess no news is good news...right? Well I am off to do some house work, I got loads (get it LOADS) more clothes to wash and fold. I might have to run out and get some shampoo. It's not like I got to wait here at home, I have a cell phone. I guess I just want answers. Wouldn't anybody, I think I am kidding myself and everyone, I think I am more worried than I am letting on. I am such an upbeat type of person always thinking positively never negatively. That's how I got to be with this what ever it is. I am still me no matter what happens. Thanks for reading and I will update when ever there is anything new to update about. God Bless.
Wednesday, December 1, 2010
Muscle Cramp
Hey I am not sure if it would be called a muscle cramp or what, but this never happened before. I yawned and under my chin and a little of my neck muscles just tightend up. It hurt so bad, but I didn't say anything I just massaged it a little. I really haven't felt right since. I don't know if that is a new symptom or what but I guess I should probably tell the doctor about it. The card that they gave me yesterday said it might be 24 to 48 hours so we tomorrow I hope. Thanks for reading...God Bless
Waiting...
Now it's time to play the waiting game I guess. It kind of stinks 'cause I don't know how many other people's MRI's or whatever he has to look at before he gets to mine. I don't even know if I will get a call, I might not find out anything until I go there next week for my appointment. Does not make me feel any better. I am still, I guess the word is anxious about it. Who wouldn't be. Well, I can't wait anymore, I am too tired of trying to find things to do waiting for a call. I have got to get some house work done, I hate a dirty house. Thanks for reading; God Bless
Tuesday, November 30, 2010
My MRI
Hello everyone, well today was interesting needless to say. I really wasn't scared or anything since I had been through this before. I had to take a pregnancy test, just like last time. I'm not, anyway, they called me back and stuck an IV in my arm and I had to wait for the MRI tech to come out to get me. All the time my daddy is out in the parking lot waiting for me to get done. The first half was without the contrast stuff and the second half he took this big syringe and and shot this stuff into the IV and it was long after that it was over with.
After that my daddy and I had breakfast and I did a little shopping and went home. I took a good nap and woke up just before it was time to get the kids off the bus.
Thanks for reading; God Bless
After that my daddy and I had breakfast and I did a little shopping and went home. I took a good nap and woke up just before it was time to get the kids off the bus.
Thanks for reading; God Bless
Monday, November 29, 2010
My MRI Tomorrow
I have had another bad headache day. Not as bad as the other day. I have noticed stuff that I think has changed in me. Somethings that didn't use to get on my nerves now really bug me. Like humming, or someone tapping my shoulder, I don't know if that is part of the symptoms of whatever this is or if its just me changing. I feel different, I don't feel like myself right now, I can't explain it. I felt strange last Sunday night at church during choir practice and so I left really early. I let them know that I needed to take a break even if it is just to figure out what is going on or something. The last time I had an MRI done my daddy was with me, this time I think it will be just me there. Oh boy! Last night in class, I take really good notes and things and I can usually answer when called on. Last night he asked me and I was like what, I don't know. It got a laugh and I laughed to, but I don't know what happened. I know that what ever it is that it is in God's hands. I am ready for whatever outcome there is, I'm trying to be anyway. I have a feeling of what it is, ad it makes me wonder if this is what Michael J. Fox had to go through to, the not knowing part of it. I could be wrong and I hope I am. I guess I am just really tired of waiting. Thanks for reading...God Bless
Thursday, November 25, 2010
Happy Thanksgiving
Hello everyone, Happy Thanksgiving! Today so far is a much better day than yesterday. I had the worst headache. I still went ahead with all of the things I had to do. I didn't take anything for it either. Just in case it might effect something else. I don't know. The really bad thing for today is that I love pumpkin, pumpkin bread, pumpkin pancakes, pumpkin ice cream and pumpkin pie. I forgot the pumpkin to make a pumpkin pie. I might write more later. Thanks for reading and have a blessed holiday.
Tuesday, November 23, 2010
Another MRI
Hello everyone, well. I just got the news that I have to have another MRI... this time it is for my brain, I guess. I really wish that all of this stuff was done already and what ever it is we would know. I am getting tired of the testing and the appointments and things. I am thankful that I decided to do this when the kids are in school instead of going over the summer. That would have been stressful for my kids, and me too. Sometimes these twitches feel sort of like a contraction, not like sever pain or anything just the way the muscles feel. Not every time it twitches, sometimes its just a twitch as to where it will twitch next who knows. Its like my body is playing a game with out me being invited to play...lol. I need to put my muscles or nerves on restriction for driving me up the wall...lol. Oh, goodness. I will keep everyone posted on what the next out come is. Thanks for reading...Have a blessed day.
Friday, November 19, 2010
My day
Hello to all. I turn on the porch light, for my husband and for the past two nights I have turned on the wrong light. I could have sworn that the light switch was the porch light. I wouldn't have known that if he hadn't asked me about it. Its just little things, but all the little things seem to add up. I hope that the next doctors appointment will help shed some light on all of this. Thanks for reading...more later.
Yesterday
Hello everyone, yesterday was a good but painful day. This was the first time that I had an eye migraine so bad that not only did it effect my whole eye it effected my sight in that eye, which I've had happen before, but it made me nauseated. I was feeling fin until I came back from taking my kids to the bus stop. The sun was bright and I know my right eye had a hard time adjusting to the lighting, but it came on quick. My mom and I were watching a movie the Legend of Jonathan Sperry, excellent movie by the way. Anyway, we were watching it and I wrapped my eye and partcal head with a blanket a small one. It took about four hours before my eye felt better, but my headache right near my temple on the right side lasted almost all day. I am not sure if that is a symptom too or not. My sister said I need to write all this down before my next appointment. If I can't remember I can always look at this blog and write it down. I got to go visit one of my friends. She lives in another town, but works in my neck of the words so I usually take a Friday or a Monday to visit her for an hour or so. Thanks for reading, and I'll right don everything if I think it might help the doctors I put it in this blog. Until the next one...God Bless
Wednesday, November 17, 2010
The Appointment
Hello everyone, well today didn't exactly go as expected. The doctor didn't get the MRI. I had to get more blood drawn. Then I have to go back in three weeks for more tests. I have to have an EEG, and another nerve conduction test. So much for today being the day I get answers. Hope everyone had a wonderful day. God Bless...
Tuesday, November 16, 2010
Tomorrow Is the Day
Well, tomorrow the appointment I have been waiting for is almost here. My friend says, "the brain doctor". I think my mom is going to go with me. I'm not sure, how I can work it out with the kids yet. It might be better for my mom to stay here and get the kids off the bus. I really want her to be with me too. AHHH, I think it might work out. It is my first appointment, probably filling out paper work, and just a consultation, maybe going over my MRI a little more in depth. I wish I knew. I will let everyone know how it goes tomorrow. Until then...
Monday, November 15, 2010
Two More Days...
Hello everyone. I have two more days to go before my appointment. I think I'm going to ask my mom to spend the night over here that night, I would like to show her our sewing class, and the GA's class at church. This week we are having dinner there again, this week is pork chops and butter beans. I'm still a little nervous, but really glad that we might figure out what is going on before Christmas. I will update on Wednesday. Thanks for reading.
Thursday, November 11, 2010
Twitching and more twitching
Hey everyone. I got six more days before my doctors appointment. I kinda can't wait because I think the twitching is getting worse. It usually just starts in different areas and it never use to twitch in one spot while twitching somewhere else, but now it does. The day before yesterday it was, it was twitching in both my legs and on my side all at once. My daughter I know is a little concerned, she saw Michael J. Fox on TV the other night and asked about him. She asked, is that what you are going to do? I don't know how his started, I told her I didn't know. My is not noticeable unless I got shorts on or a short sleeve shirt, and you might not even notice it then unless I point it out. Some twitches are stronger than others and you could probably see those without any mention. I just want answers soon, I would like to know if I should start planing different things other than what I really want. I would like to be able to teach our daughter at home next school year and I have so many cool ideas about that. I'm scared to even consider that right now, and I'm not sure if I really am subconsciously worried about the whole twitching thing or not and if that plays a roll in my memory or speech or what. I do have a tendency on saying something backwards or not remembering simple things. I know most everybody goes through that but with me it is almost everyday. For example, day before yesterday I was on the phone with a friend of mine and we were going to meet at the grocery store, I sit down still on the phone with her and start doing something else. She says something, like where are you and I said I'm trying to put my stuff in order and then I remembered I was suppose to be at the store. We stayed on the phone the entire time. I'm not sure if it was because we just wanted to stay on the phone or weather she was worried that I would forget where I was suppose to be going. I don't know, hopefully they will have answers for me, or oh boy more tests that costs so much. Then that will just add to the now mounting medical bills that I don't know how we are going to pay for. I'm not even sure if our insurance covered the MRI or not. The MRI place sent us the entire bill, and that was for three house payments, and the one for the bone scan was the price of one house payment. I'm not sure if the insurance paid any of that one either. I don't know. Blah, blah, blah. Sorry I seem to be venting now. Anyway, thanks for reading. Hope you and your family have a blessed day. I'll type more later. P.S. Please check out my other blogs. My other blogs are way less serious. http://kimmi1996.wordpress.com/
Wednesday, November 3, 2010
Ear
Okay so I don't know if this is another twitch or what happened. It felt like one of my twitches, except it was in my ear. I wouldn't have minded it so much except for the fact that I could hear it. It sounded like something was in there for just a minute or so. I don't know. I have like 14 days until my appointment, hopefully they can tell me something.
Friday, October 29, 2010
No Update yet
Hello, everyone. Happy Halloween ! Well, I am a little nervous about going to my doctor's appointment in November. I talked with a friend who had been there before. So it doesn't sound so scary anymore. I find new things that I should be writing down to tell them when I get there that I have forgot to tell my other doctor. Sometimes, I stare for no reason its like I got a pause button and something somewhere hits it. Not too often. Then I was reading something to do with my son's homework. I said the word alliteration, and when it came up again I completely forgot how to pronounce it not once but at least three times. I can't stand doing stuff like that especially in front of my kids and husband. I told our daughter to do something, when she was done with her homework, when it came time for her to do what I asked her. Which was only like five minutes later, I looked at her like I didn't have a clue what she was talking about. I know that had to scare her. We use to joke about it calling them Lucy Moments; from I Love Lucy, I love that show and I am a lot like her character, except for the crying thing. Anyways, maybe if I put it in here I'll remember to print it up and take it with me or just remember to let them know. Well, I have to go find a white shirt to cut up for the trunk or treat. Thanks for reading...
Saturday, October 16, 2010
Busy Day
Hi to all. My Saturday was very busy. My family and I were apart of the Susan G. Komen Race For the Cure. My husband did the 5k run, he was happy with the time he made, after all this was our first race. My kids and I walked the 5k, they were really good. I am so proud of them. After that my husband had an office picnic that we attended not long after the race. We had a good time. Finally, we came back home and in the mail was the letter of my next appointment. It will be in November. I pray that they can shed light on to what is going on. Hopefully this one will be the one that they say, "Alright Kimmi we know what is causing this and it's...
I'll write more later.
SAVE THE TATA'S
I'll write more later.
SAVE THE TATA'S
Thursday, October 14, 2010
The Bone Scan Results
Okay, here we go the good news first. The good news is that my bone scan turned up fine. There is nothing wrong with my bones. The bad news is that it doesn't explain what showed up on my MRI, so now I have to go to a neurologist. Wow, I was really hoping for some kind of news any kind, any diagnoses. Now, I have to wait for a letter stating when the appointment is and where it will be at. More waiting, I'm glad I'm not that much of an impatient person.
Full Body Bone Scan
Okay, now I am a little scared. This test was yesterday, so this will get everyone all caught up. First, I had to go and get an injection of radiation. I had to wait four hours after the shot, I din't have to stay at the hospital, which was good. I asked my mother-in-law if she could get the kids from school because I was suppose to be getting the scan around that time. When I came back I had to lay down on this table and the scanner thing came what seemed like an inch away from my face, talk about the walls closing in. I didn't like that at all. The noise wasn't so bad, it was like maybe a light, very light hum. I just had to lay still and it was over before I knew it. I came back home and went on the rest of my day like normal. The only thing I'm doing now is waiting on the test results, hoping that there are no more tests for me to do.
Blood Test Results to....
Okay so week before last I get the blood test results...it ia all good news nothings wong with my blood. Which leads to another test. Yikes, I'm still not scared just wondering when we are going to find out something good or bad. My next test is a full body bone scan...
MRI results, physical, and blood tests
Okay so now we are into week four of this journey. The MRI showed a spot on my neck and back. What kind of spot, I don't know. I get fussed at by my sister because I don't ask questions. She's a nurse, so she would know the right questions to ask, me I don't know, I guess I just don;t think of any while I'm there. So I had a physical, and they took some blood, that I do know why. They drew blood to see if my blood cells were doing what they need to do for the bone. I am still not scared, whatever happens, happens. I know that it is all in God's hands...
MRI
My next test was the MRI. Wow, that test was sooooo LOUD. The earplugs that they gave me didn't work very well. I don't get scared when it comes to stuff like that but that noise is enough to drive anyone a little mad. I laid there with my eyes open thinking, why hasn't anyone painted it on the inside to make it nice for people to look at instead of just seeing white. Then I prayed, I knew God was there with me, and I told him that I missed my cat and if he could pet him and give him a little kiss on the head for me. Then I imagined surfing or just walking on the beach with my kids just to get my mind off of the noise. My dad was with the kids that day so I didn't have to worry about them. I might of said a little prayer for my dad because he was watching the kids, I didn't want them to give him a hard time. Needless to say I was back at the doctor's office for yet more tests and the results....
Nerve Conduction Test
Last month is when I finally swent to the doctor about this strange occurrence. My doctor checked me over, made sure my reflexes were good and stuff like that. She ordered my first test which was a nerve conduction test. A nerve conduction test for those of you that don't know is a test to see how well your nerves react. It is done with what looks like a small tazer and it does send small electric currants through an area of your body, and your reflexes will defiantly be on their p's and q's. Then there is the needle that goes into the muscle, but it doesn't go all over. It checks the muscle reaction. Anyway it was a little uncomfortable, but I guess it depends on the person. It was a fairly quick test. Anyway, the results to this one for me was inconclusive. So back to the doctor I go...
My Medical Journey
Hi everyone! I am really new to this whole blogging thing so please bare with me. My name is Kimmi, I am 36, I have two children, and a wonderful husband.
Anyway, this blog is about my medical journey. First let me get you all caught up on the symptoms and everything. It was two and a half years ago when my fingers on my left hand started to twitch. They moved back and forth rapidly sometimes, but then would quit. Then they started to get stuck in the same postion, that was painful and it lasted longer than the twitching. I ignored it hoping that it was because I started doing new things like mowing the grass. So I blew it off, for a while, until recently.
Recently, the twitching moved all over, and I mean all over. It doesn't happened all the time and when it does I get suprised sometimes as to where its twitching at. Sometimes they're strong and scare me, it feels as if someone is poking me from the inside, others are just there. I didn't think much of it, I thought maybe it is just because I'm getting older, or I'm more active or something. Until my daughter started getting grossed out at seeing something poking her mom inside her leg. She said something like it looked like something was trying to get out. That's when I decided that it was time to go see the doctor about this strange twitching.
Anyway, this blog is about my medical journey. First let me get you all caught up on the symptoms and everything. It was two and a half years ago when my fingers on my left hand started to twitch. They moved back and forth rapidly sometimes, but then would quit. Then they started to get stuck in the same postion, that was painful and it lasted longer than the twitching. I ignored it hoping that it was because I started doing new things like mowing the grass. So I blew it off, for a while, until recently.
Recently, the twitching moved all over, and I mean all over. It doesn't happened all the time and when it does I get suprised sometimes as to where its twitching at. Sometimes they're strong and scare me, it feels as if someone is poking me from the inside, others are just there. I didn't think much of it, I thought maybe it is just because I'm getting older, or I'm more active or something. Until my daughter started getting grossed out at seeing something poking her mom inside her leg. She said something like it looked like something was trying to get out. That's when I decided that it was time to go see the doctor about this strange twitching.
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